Where to
start… Some of you may know a bit, some may know nothing at all, we have talked
to a few and let word trickle out because that was easiest for us. The news is,
I just had a brain tumor removed.
It started
with intermittent, but persistent headaches in November. I was still
functioning just fine and taking ibuprofen when I saw my doctor for a check-up
in December. We talked about the fact that headaches are fairly common for me,
and I was starting to get ready to work for H&R Block and stress levels and
stuff, and figured it was a tension headache. Over Christmas Break I started
feeling worse, kind of cotton-headed and tired, and the headache was more
persistent. I went in and saw the doctor again and we ran through the gamut of
neurological tests (squeeze my fingers, does anything feel tingly, touch your
finger from your nose to my finger, etc.). I passed fine and got a couple of
tension shots at the base of my skull to see if that would help. It helped the
pain on one side, but not the other. I
saw the chiropractor a few times, but that didn’t help. I would go and get a
massage and that would help for a few hours. Around New Years, I felt the
worst. So dizzy I was sick. I spoke to
my doctor on the phone and he said it was likely an inner ear infection along
with the tension headache and to take some over the counter anti-nausea
medicine and take it easy for a couple of days. As the dizziness got less, the
headache got worse. The pressure built and bending over was a bad idea. I held
my head very carefully and tried to move it as little as possible. Towards the
end of January, I would work a half day at work and come home and rest. I had a
day off on January 24th and was able to get in and see my doctor
again. This time they asked if the headaches had woken me up at all. I said
yes! Who knew that was a bad sign? That’s when they sent me in for an MRI.
Looking back
it seems like we dragged this out, but getting an MRI is not cheap. We didn’t
want to come out guns blazing if I was just going to have tension headaches for
the rest of my life and just have to deal with them. It was very depressing to
not feel like a fully functioning person. Brent and the kids really stepped up
with helping out around the house in January.
I took Friday January 25th off and we went in at 7:30 pm for
the MRI. After the MRI they had us wait while they tried to contact our doctor,
but the one who ordered the test was out of town. They took us to the ER to
meet up with the on-call doctor from our clinic so we could discuss what they
found.
They found a
tumor. It was on the left side in the cerebellum and about the size of a lime
or small egg. It was pushing up against the drains for the venous cavity (a
balloon like spot in the center of the brain) which made it difficult for the
brain fluid in the venous cavity to drain. The radiologist wanted me admitted immediately,
because of the pressure. The
neurosurgeon they had called said if I could walk in, I could walk out. The
neurosurgeon put me on a high dose of steroids (4 pills a day) and sent me
home. My parents took the kids for the weekend, and I became more of a person
again as the steroids shrank the swelling, making the headache go away and the
cotton-headedness subside. We just stayed
home and chilled all weekend. People at church knew I had been sick and being
able to not give any more answer than I had a brain tumor didn’t seem
productive and just exhausting.
Monday
morning (January 28th) we met with Dr. Bryson Smith, the neurosurgeon.
We scheduled the surgery for Thursday. I called into my jobs and told them that
I had a tumor and would be having surgery. We went grocery shopping and cleaned
house a bit, Brent went to work and wrote sub plans. I took the kids to school
on Monday morning and told their teachers.
My mom went on a leave of absence from her work. My little sister Martha,
who is single and lives in Michigan, was able to fly out Wednesday night.
The hospital
called on Wednesday, we got an early arrival time on Thursday, 6:45 a.m. Having
surgery is a LOT of “hurry up and wait”.
We got checked in, I got changed in to my surgical gown, and then they did
another MRI (this one was for the computers that were going to guide the
surgeons), which all took about 3-4 hours. Dr. Smith shaved a couple of little
spots to place markers on my head for the MRI.
It was nice being on an IV and not getting hungry, and I was very glad
Brent had found a book reader app for my phone.
We met the nice nurses and the anesthesiologist came and got me a little
after noon. By the time they wheeled me to the operating room, I was done. Too
much to think about and worry about, and I just started crying and thinking I
didn’t want to be there. They were nice and I went to sleep right away.
I woke up
after surgery in the ICU. We had a great nurse there, Rob, that was very
attentive. I was in pain and they moved my IV so it worked better. I could move
my feet and talk right away and that was excellent. I am sure I would have been
happy if I hadn’t been so depressed about the whole situation. I was very
clingy to Brent and thought about him spending the night in the ICU waiting
room (because there wasn’t a place in my room for him to stay). But as the
anxiety and anesthesia wore off I was able to be calm again and he was able to
go home and sleep in our bed. Brent
stayed by my side and fed me ice chips, which were a blessed distraction.
I stayed in
ICU until Friday night and they moved me into a regular room. By then, they
just had me on oral pain relievers and a muscle relaxant. Around that time I had a bowl of chicken soup
to eat.
When I moved
into the regular room I was able to walk carefully and slowly into the bathroom
and back to bed. I didn’t have any real problem with nausea (hooray!!!) and was
able to eat as I felt up to it. The doctors came and said the surgery went
well, that they did a gross removal of the tumor. Initial pathology looks like
it is the breast cancer, but we won’t know for certain until we meet with the
doctors this week. The surgery went well, no side effects or need for physical
therapy. The way I think of it is as a pushing tumor. So it did not consume or
worm its way into different parts, just grew there like a lime. The
neurosurgeon said my brain should slowly expand back out to its natural space,
and I believe we won’t have any neurological side effects where we haven’t seen
any yet.
I was able
to come home Sunday afternoon from the hospital. Martha and my mom were both
still here with the kids. Martha flew home Monday and Mom went home Tuesday.
Brent will take off through Monday, when we visit with the neurosurgeon for the
post op.
I have a
full body scan scheduled for Thursday morning. This is when we see if there is
cancer anywhere else. So we are currently in the “crisis averted, what’s next
stage”. We will meet with the radiation oncologist Friday morning and figure
that out then. Hopefully we will have the pathology on Friday when we see Dr.
Ingersoll (the radiation oncologist), but will definitely have that back by
Monday when we meet with Dr. Smith (the neurosurgeon).
The incision
seems to be healing well; the surgeon was very nice and only shaved a very
small area around the incision, so my hair covers it nicely. So now we are just taking it easy, a pain
pill and a baby step at a time. J
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